But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. These effects include a warm, flushing sensation, a salty or metallic taste in the mouth, a brief headache, or nausea. Told to me by each and everyone whos never had this cancer! Radioactive iodine treatment. As it turned out, my fears, or premonitions were right. As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). Now the top of my hair is thick and fine and the back of my hair is thick and curly it has a little bit of wire feeling to it. Hey! Thyroid Ultrasound: A thyroid gland impacted by Graves' disease is often enlarged and may have increased blood flow; both of these elements can be visualized by thyroid ultrasound. Use disposable dishes and place them in a specially marked plastic bag for disposal. This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. Foods to Avoid if you Have Thyroid Problems: Ive found that these 10 foods cause the most problems for thyroid patients. Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Verywell Health's content is for informational and educational purposes only. If you have any thoughts, I would appreciate those. not the treatment of choice for them. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. Thyroid hormone regulates the metabolic rate of an animal. Tips for Eating and Cooking While on a Low Iodine Diet. I had RAI 20 plus years, I am 56 and my numbers are good. The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. I know, I know, I shouldnt be so vain. Will it . More important than how the procedure works is how it will affect you afterward. Strange I know. The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. Before they killed my thyroid and before it was even diagnosed the heat affected me something terrible and would just take my breath away. And if the color is hash on the . They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). And Ive become Flat with my emotions now. I live in Florida and I cannot stand enjoy the outdoors anymore because of the heat. Welcome to my website! Does Taking Thyroid Medication Cause High Blood Pressure (Hypertension)? Hyperthyroidism is a condition where your body produces too much thyroid hormone so the treatment is to destroy your thyroid gland and stop that production. Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. To help prevent thyroid problems that may cause hair problems, it's important to get sufficient dietary . Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. Its often a far better use of your time to find a new doctor than try to convince an old doctor to change what they think: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/. Iodine (chemical symbol I) is a chemical element. Theres a higher risk that the cancer comes back but its also a way to preserve some thyroid function. Dairy products (such as milk, yogurt, and cheese . 1. I expect to be back to probably about 60 to maybe 70% and that is pushing it. No social life, have to check VS and glucose readings so often. Is there anything I can do to protect myself as I am driving her. So, I need to have an exercise program, vitamin and minerals that may help, food intake regulated to progress to increasing bone mass and weight loss. When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. Free T4. Many doctors recommend that women avoid becoming pregnant for 6 months to a year after treatment. This is my own journey with battling cancer and by any means not meant to scare or offend anyone, but to get my story out. Methimazole Side Effects You Should Be Aware Of (What to Expect), Hashimotos vs Graves Disease: Differences & Similarities, read more about my own personal health journey, free thyroid downloads, resources, and PDFs here, https://www.restartmed.com/hyperthyroidism-weight-gain/, https://www.restartmed.com/weight-loss-thyroidectomy/, https://www.restartmed.com/thyroid-doctor/, https://www.restartmed.com/thyroid-hair-loss/, https://www.restartmed.com/hormone-mastery/, https://www.restartmed.com/methimazole-weight-gain/, https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/, https://www.restartmed.com/product/t3-conversion-booster/, https://www.restartmed.com/product/thyroid-adrenal-reset-complex/, https://www.restartmed.com/product/leptin-resistance-rx/, https://www.restartmed.com/normal-thyroid-levels/, https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/, https://www.restartmed.com/levothyroxine-thyroidectomy-patients/, https://www.restartmed.com/weight-loss-after-thyroid-removal/, https://www.restartmed.com/hypothyroidism-diet/, https://www.restartmed.com/product/thyroidectomy-rai-bundle/, 3 New Thyroid Support Supplements: Thyro Fuel, Thyro Biotic & Hashimotos Ab Rx, The 50 mcg Levothyroxine & Synthroid Medication Hack. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. Are those levels indicative of something going wrong? It can also help to diagnose and treat some other cancers and conditions. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? My only option for help is the ER which is somewhere I dont want to go with all the crap a going around. SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. Hi In the mean time, Im feeling worse about myself than with this original post. What should I do after this treatment to restore my metabolic functioning and gut biome? Thanks look forward, Yes! I am 70 years old and I am beginning to worry. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! You may gain weight after you undergo radioactive iodine treatment. For most people, this means that you can expect to live at 80-90% of your 'normal'. Since then I have suffered most every day with severe chemical sensitivity. After that they again were having the same symptoms. After rai treatment I had blood test results was :freet4 was 13.3pmol/L (11-23)free t3 was 4.30pmol/L it was normal (3.1-6.8) I was happy and I had another blood test 26 July 2017 and results was TSH was 0.01 (0.35-4.94) freet3 was 16.32 pmol/L (never ever high like this before) (3.1-6.8) my freet4 was 46.3 pmol/L (11-23) I was shocked how this happened after RAI treatment Sir ? Iodine and Hair Loss. I guess that is my main question because I am willing to do the hard work even if it takes a long time. Im a nurse, and tend to over think things. The thyroid gland is the only tissue in the body that takes up and holds onto iodine. With a regime as this, its no wonder for depression, no sleep! It's permanent; once you take the iodine capsule there is no changing your mind. I have tried everything and it is frustrating. Radioactive iodine does not produce hair loss. Fortunately, most patients experience reduced symptoms about a month after treatment. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. And was doing well on a vegan/plant based diet. My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) The I-131 leaves your body through your urine primarily. The radiation will pass out of your body through your urine within days. For my surgery in April, I had a double whammy because a week prior to my surgery I had a molar tooth extracted with surgical dental sedation, and was still on a soft diet, so that was easy, they supplied me with baby food pureed fruits the entire time I was in the hospital. A swollen or tender neck and feeling flushed. I have a quick question. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. I dont see such good numbers. I would recommend touching base with your doctor to see if its related to your procedure or if its caused by something else. Unfortunately, the best way to prevent weight gain after RAI is to go into the procedure at a normal weight. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. 4. So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. Take care in washing, treating and grooming your hair. Radioactive iodine is absorbed and concentrated by the thyroid gland. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). So far I feel strong and as I did before. Doctors use nuclear medicine to diagnose, evaluate, and treat . If possible, its always ideal to try and normalize your weight BEFORE the procedure. Repeat the process if necessary. Symptoms of a moderate or severe reaction that require urgent medical care include: Severe vomiting. Dr. Yash Khanna answered. Be particularly careful around infants and children, who are especially at risk for exposure complications. If you destroy the entire gland then you will definitely need to be on thyroid medication. I'm Dr. Westin Childs. One thing I didnt see in your article is the correlation of Thyroid to Diabetes and CTS. (Pat). The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. What type of cancer is treated with radioactive iodine? Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. After Your Radioactive Iodine Treatment Getting home. This resource is dedicated to helping people with thyroid problems, hormone imbalances, and weight loss problems get the help that they need. How will I know if I am producing my own thyroxine? You get it in liquid or pill form. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. Another doctor wants my temp and glucose readings, temp shes ok with once or twice during the day. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). and I'm proud to say that over 80,000+ people have used them over the last 6 years. 2 Capsules of Thyroid Adrenal Reset Complex daily https://www.restartmed.com/product/thyroid-adrenal-reset-complex/ The recommended timeframes are based on the size of the dosage you are receiving, so discuss the specifics with your healthcare provider prior to treatment. Then too, my annual eye exam with dilation is due now, that appointment is upcoming, as well as further dental with my regular dentist now that I have the one impacted and rotted tooth extracted. Contact: NCI Press Office. I am in the military, stationed in Fl. I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. Most thyroid patients who receive RAI treatment eventually end up hypothyroid and will need to take thyroid hormone replacement drugs indefinitely. Its definitely possible it just takes more time and the weight loss is slower. Thank you. Our website is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Its not vain at all! Just realize that you will always be in a sensitive category and you will be more likely to gain weight compared to people with their thyroid intact. For most people, this means that you can expect to live at 80-90% of your normal. Im having my RAI tomorrow, and my oncologist said I could go back to work right after. The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? Hello, not sure if this post is still active. These are the questions that I want to focus on today and hopefully answer many of the current questions that you already have. And I cry at the drop of a hat now too. I cant find anything suggesting these are expected symptoms after RAI. The presence of any of these symptoms AFTER your procedure (especially if you didnt have them prior to your procedure) may be an early indication that your thyroid medication is not optimized. Flush the toilet two times after each use. Eat breakfast. Approximately 90% of people who take radioactive iodine to treat hyperthyroidism need only one dose, although it may take up to 6 months for it to fully work. You can eat the following foods because they contain very low levels of iodine: fruits and vegetables including potatoes. If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . Your thyroid gland absorbs nearly all of the iodine in your body. Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. Thank you and God bless! Protecting Your Family After Radioactive Iodine Treatment. (former Osteopathic Physician). Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. Radioactive iodine therapy is a type of internal radiotherapy treatment for thyroid cancer. Now, yesterday and today I had my Thyrogen injections, and tomorrow I go get my I 131 RAI pill and on home isolation for the following 7 days, and then my whole body scan. Iodine is a mineral that your thyroid uses to create thyroid hormone. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. #1. https://www.ncbi.nlm.nih.gov/pubmed/22914564, #2. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5413587/, #3. https://www.liebertpub.com/doi/abs/10.1089/thy.2010.0090, #4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5455212/, #5. https://www.ncbi.nlm.nih.gov/pubmed/28545679, #6. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3336179/, #7. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851449/, #8. https://www.ncbi.nlm.nih.gov/pubmed/18832945. Also learn more about our which will minimize the contamination in your home's isolation room. to covid weight, but now the hair loss! If I take a snack is determined on what my glucose reading was. The radiation comes from a radioactive substance called iodine-131. hisc hose nozzle parts. Even at this age, I still want to feel and look pretty. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! Your doctor should monitor you for symptoms of hypothyroidism after RAI treatment. Some people may have a feeling of tightness or swelling in their neck for a few days after treatment. Within the first 2 years I gained 15 pounds with no diet/lifestyle change. My health is anything but wonderful. Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. Not to mention the radiation! Importance: Patients who undergo radiographic studies with contrast receive an enormous bolus of iodine. People who do have hyperthyroidism tend to have a fast metabolism, but the treatment for hyperthyroidism (the medication you are taking) slows down the metabolism dramatically which leads to weight gain. You should have your thyroid lab levels tested to see if you need medication. I had severe fatigue, sweats etc and they did labs and said my count was high 5.4 and referred me to a civilian provider. https://www.restartmed.com/product/t3-conversion-booster/ He also told me something about an injection of something, as well as being on some sort of thyroid hormone replacement therapy for the remainder of my life. Difficulty breathing. The good news is that this particular side effect doesnt last very long (compared to some of the other issues we will be discussing next). The iodine is taken into the thyroid gland and incorporated into thyroxine. I eat three meals with three snack times. My problem now is my hair loss and I cant help get rid of this problem. 240-760-6600. TSH. Pls.can u explain about this. Answer (1 of 9): I have direct experience with this question because my wife had radioactive iodine treatment for her thyroid cancer and she was supposed to stay away from me and our parrots for 3 days until the radioactive iodine dissipated from her system. Nuclear medicine uses small amounts of radioactive material called radiotracers. NOT GOING TO TAKE MORE PILLS! Some on the list I cant take to begin with, iron is one, when I take it, no matter how strict I am about taking it so many hours before or after other meds and meals, I still puke it up about fifteen to twenty minutes after taking it. I'm Westin Childs D.O. I also happen to formulate the best supplements on the market (well, at least in my opinion!) Thank You. I know they are going to try to drop me further. The trip will be about 45 minutes each way. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. Thank you, I had RAI treatment 21 April 2017 dose was 400 MBq ( United Kingdom) I was diagnosed Graves disease 2008 my thyroid levels wasnt massively high I refused rai treatment 2011 contunie Antithyroid medication treatment almost 8 years ! This was published id a study by dr brunelli fro. This is my story.

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